Orphan Products for Rare Diseases: Availability and Accessibility - They're Not The Same Thing
Thursday, March 7, 2024 | McNamara Alumni Center and online
Keynote speakers:
David Fajgenbaum, MD, MBA, MSc
Associate Professor of Medicine
Director, Center for Cytokine Storm Treatment & Laboratory
Associate Director, Patient Impact, Orphan Disease Center
University of Pennsylvania
Co-Founder & President, Castleman Disease Collaborative Network
Co-Founder & President, Every Cure
Director, Center for Cytokine Storm Treatment & Laboratory
Associate Director, Patient Impact, Orphan Disease Center
University of Pennsylvania
Co-Founder & President, Castleman Disease Collaborative Network
Co-Founder & President, Every Cure
David J. McLean, PhD
Chief Executive Officer of Emerging Therapy Solutions
Schedule of events
9:00–10:00 am | Patient Advocacy Group Breakfast
*presentation by Susan Berry, MD about the UMN Rare Disease Center of Excellence*
10:30–12:00 pm | Poster Symposium
12:00–2:00 pm | Formal Program