Rare Disease Day 2024

Rare Disease Day 2024 share your colors banner. Diverse group of people proudly standing in front of RDD logo.

Orphan Products for Rare Diseases: Availability and Accessibility - They're Not The Same Thing

Thursday, March 7, 2024 | McNamara Alumni Center and online

Keynote speakers:

David Fajgenbaum
David Fajgenbaum, MD, MBA, MSc
Associate Professor of Medicine
Director, Center for Cytokine Storm Treatment & Laboratory
Associate Director, Patient Impact, Orphan Disease Center
University of Pennsylvania
Co-Founder & President, Castleman Disease Collaborative Network
Co-Founder & President, Every Cure

David McLean
David J. McLean, PhD

Chief Executive Officer of Emerging Therapy Solutions



Schedule of events

9:00–10:00 am | Patient Advocacy Group Breakfast
*presentation by Susan Berry, MD about the UMN Rare Disease Center of Excellence*
10:30–12:00 pm | Poster Symposium
12:00–2:00 pm | Formal Program