Rare Disease Day 2021

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February 26, 2021 Rare Disease Day Presentation

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Introducton From Joan T.A. Gabel

Patient Advocacy Groups

The ALS Association
Autoimmune Hepatitis Association
Engage Health*
Epilepsy Foundation of Minnesota*
Ethan's Reason
Hemophilia Foundation of MN/Dakotas*
Lennox-Gastaut Syndrome (LGS) Foundation*
Minnesota Council on Disability*
Minnesota Rare Action Network
National Ataxia Foundation*
National Marrow Donor Program/ Be The Match
Organic Acidemia Association*
Rein in Sarcoma*
Research to the People*
Retina South Africa
Sickle Cell Foundation of Minnesota
United Mitochondrial Disease Foundation*
Usher Syndrome Coalition*
Yaya Foundation for 4h Leukodystrophy

*hosted exhibit table

Rare Disease Day Proclamation


Bluebird Bio
Bristol Myers Squibb
Fairview Pharmacy Services
Greenwich Biosciences
Horizon Therapeutics
Jeeva Informatics Solutions
Ligand Pharmaceuticals
Nucleus Network
Orchard Therapeutics
Takeda Pharmaceuticals