Rare Disease Day 2022

Banner stating "Rare Disease Day"

February 25, 2022 Rare Disease Day Presentation 

Rare Disease Day 2022 Presentation Slide

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Introduction from Joan T.A. Gabel

Joan TA Gabel video presentation still


Patient Advocacy Groups

ALS Association
Chloe Barnes Rare Disease Advisory Council*
Cystic Fibrosis Foundation of MN
Dup15q Alliance
Epilepsy Foundation of MN
Family Voices of Minnesota
HCU Network America
Huntington's Disease Society of America, Minnesota Chapter*
Minnesota Pharmacists Association*
National Marrow Donor Program/ Be The Match
National Ataxia Foundation
Organic Acidemia Association*
PACER Center
Rein in Sarcoma*
Research to the People
Retina South Africa
Siblings with a Mission*
Spina Bifida Association of MN
United Mitochondrial Disease Foundation*
Yaya Foundation for 4h Leukodystrophy
*hosted exhibit table


Acadia Pharmaceuticals
Alexion Pharmaceuticals
Bluebird Bio
Fairview Pharmacy Services
Gillette Specialty Children’s Healthcare
Greenwich Biosciences
Horizon Therapeutics
Orchard Therapeutics
Takeda Foundation
Taysha Gene Therapies

Posters & Post-Event Access to Whova

You can still view posters! All event content will remain available to attendees on Whova until 5/25/2022.