Rare Disease Day 2022

Rare Disease Day

February 25, 2022 Rare Disease Day Presentation

Screenshot of the February 25 rare disease day video presentation

Introduction from Joan T.A. Gabel

Introduction from Joan T.A. Gabel

Joan TA Gabel video presentation still

Keynote Slides

Patient Advocacy Groups

Patient Advocacy Groups

ALS Association
Chloe Barnes Rare Disease Advisory Council*
Cystic Fibrosis Foundation of MN
Dup15q Alliance
EBlifestyle
Epilepsy Foundation of MN
Family Voices of Minnesota
HCU Network America
Huntington's Disease Society of America, Minnesota Chapter*
Minnesota Pharmacists Association*
National Marrow Donor Program/ Be The Match
National Ataxia Foundation
Organic Acidemia Association*
PACER Center
Rein in Sarcoma*
Research to the People
Retina South Africa
Siblings with a Mission*
Spina Bifida Association of MN
United Mitochondrial Disease Foundation*
Yaya Foundation for 4h Leukodystrophy
*hosted exhibit table

Sponsors

Sponsors

Acadia Pharmaceuticals
Alexion Pharmaceuticals
Bluebird Bio
Fairview Pharmacy Services
Gillette Specialty Children’s Healthcare
Greenwich Biosciences
Horizon Therapeutics
Orchard Therapeutics
Takeda Foundation
Taysha Gene Therapies

Posters & Post-Event Access to Whova

Posters & Post-Event Access to Whova

You can still view posters! All event content will remain available to attendees on Whova until 5/25/2022.