Rare Disease Day 2020

Rare Disease Day

Friday, February 28, 2020

9:00 a.m. - 2:30 p.m.
McNamara Alumni Center, 200 Oak St SE, Minneapolis MN 55455

RSVP & Abstract Submission Form


Keynote Speaker

Sarah Wicks
"The Rare Disease Treatment Approval Process: Balancing Gold Standard Evidence with Patient-Centered Flexibility"
Sarah Wicks, JD, MPH

Sarah Wicks is an associate at Hyman, Phelps & McNamara, P.C. where she works with sponsors to bring life-changing therapies to market, particularly for persons with rare disease. She is a graduate of the University of Maryland School of Law and Johns Hopkins School of Public Health. Through her efforts, Sarah has gained a growing appreciation for the value of patients’ experiences and the need for the patient voice to inform product development. She is dedicated to furthering the involvement of patients in rare disease drug development as well as advancing and accelerating the development of new breakthrough therapies for those with rare conditions.

Rare Disease Day Research Awards

Trainees (including undergraduate, graduate, and professional students, postdocs) are invited to apply for a Rare Disease Day Research Award. To be considered for this award, trainees must submit a personal statement with their abstract submission on how their research or  research path contributes to the understanding and/or treatment of rare diseases. Three posters will be selected to receive this Award. The author of each personal statement will receive a $100 gift card.

Event Agenda

9:00-10:30 | Patient Advocacy Group Breakfast & Networking Session
10:30-12:00 | Poster Symposium
12:00-2:30 | Formal Program

Formal Program Agenda

Video greeting...University of MN President Joan T.A. Gabel
Video greeting...MN State Senator Amy Klobuchar
Introduction of Rare Disease Advisory Council (RDAC)...Erica Barnes, RDAC Administrator
Keynote...Sarah Wicks, JD, MPH

Rare Disease Day Sponsor Footer