The Rare Diseases Health Care Access Study
The Chloe Barnes Advisory Council on Rare Diseases (CBACRD) has created The Rare Diseases Health Care Access Study to change the outcome for Minnesota patients and families living with rare diseases. With better understanding of rare diseases’ barriers to seeking and accessing health care,
we hope to remove those obstacles and establish programs and resources. The Rare Diseases Health Care Access Study is an online questionnaire survey that takes about 30 minutes. Know someone who might qualify? Please invite them to participate!