Rare Disease Day 2021
Telehealth in Rare Disease Clinical Practice and Research: The Silver Lining Now and Beyond COVID-19
The theme of this year's program will be telehealth. Possible panel topics include, but are not limited to: provider and patient experiences, policy and legal implications, and how clinical trials will need to adapt.
11:30 a.m. – 12 p.m.
Patient Advocacy Groups and Event Sponsors Exhibit
"Successes and Shortcomings of Telehealth for Rare Diseases from the Clinician Point of View" with Susan Berry, MD, Professor, Department of Pediatrics, University of Minnesota Medical School
"Policy, Patients, and Telehealth’s Post-Pandemic Potential" with Bobby Patrick, Vice President of Strategic Growth and Policy, Medical Alley Association
"Role of Telehealth in the Conduct of Clinical Trials of Orphan Therapies & Patient Reported Outcome" moderated by Paul Orchard, MD, Professor, Department of Pediatrics, University of Minnesota Medical School