News and Events
Within the rare disease community, it is understood that the cost of living with a rare disease, both economically and socially, is immense. Yet, no one has examined the true cost on a large scale in the U.S.
Congratulations to Jim Cloyd for being appointed to the scientific advisory board of Citizens United for Research in Epilepsy (CURE). The CURE scientific advisory board provides insights on the landscape of epilepsy research and strategic guidance on areas that CURE could drive impact for those affected by epilepsy. CURE is the largest funder of epilepsy research outside of the NIH and Department of Defense. Congratulations, Jim!
Register by July 3rd to engage with Rare Across America month. Rare Disease Legislative Advocates (RDLA) staff organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The meetings take place in the Member’s district office during the month of August, while Congress is in recess from August 3rd to September 7th, 2020. The RDLA team also helps to prepare advocates for their meetings, providing legislative resource materials and hosting pre-meeting training webinars.
Congratulations to Erica Barnes, CODR Member and Administrator of RDAC, on her recent acceptance into the Executive Master of Healthcare Administration program at the University of Minnesota.
Lori Endsley was recently elected to serve on the Civil Service Senate. Her three-year term will begin on 7/1/2020. Congratulations, Lori!
Congratulations to Parker Johnson for earning a Rho Chi Research Award! This award is for a PD4 who has contributed to and shown promise of excellence in research and pharmaceutical science. Parker joined CODR in 2018 to work with Dr. Kartha on Gaucher Disease. In the ensuing 18 months, he developed a method to isolate small vesicles from blood samples that could potentially be a resource for identifying biomarkers for diagnosis or treatment response. Congratulations Parker!
The University of Minnesota College of Pharmacy mourns the loss of Don Uden, PharmD, professor in the Department of Pharmaceutical Care & Health Systems, who died on Saturday, March 21.
The University of Minnesota College of Pharmacy has ranked third in this year’s U.S.News and World Report’s ranking of pharmacy schools.
Last month, VALTOCO — a nasal diazepam spray designed as a rescue therapy for patients with epilepsy who have seizure clusters — received FDA approval.