Research Conferences

We host a variety of speakers throughout the academic year to share information about rare disease research and industry. Seminars are free and open to the public. No advance RSVP is required.

Thursdays from 11.15am-12.30pm
All Seminars will be held virtually on Zoom

Date Speaker Department Title
9/15/2022 Marie Kuker Kuker Regulatory Consulting, LLC FDA and the Regulations Governing Clinical Trials: An Overview
9/22/2022 Cathy Long & Melissa Mazzone Sanofi Newborn Screening for Pompe Disease and MPS l
10/6/2022 Chenxu Li ECP graduate student Submitting an IND: What We Need To Know
10/13/2022 Anna Plasch Zogenix Clinical Overview of Fintepla (fenfluramine oral solution) for Lennox-Gastaut Syndrome
10/20/2022 Jennifer Brown Medical Laboratory Sciences Program Drug testing basics for different Laboratory settings: Research, Medical, and Legal
10/27/2022 Rae Blaylark Sickle Cell Disease Foundation Sickle Cell DIS-ease: A Community Perspective
11/10/2022 John Devine Amryt Pharma Oral Octreotide, the Transient Permeability Enhancer (TPE) Formulation, and the Acromegaly Patient Experience
11/17/2022 Jae Roh ECP Postdoc fellow Discussion on IND Amendments
12/1/2022 Linda Page Medtronic Cerebrospinal fluid dynamics
12/8/2022 Megan Barra Marinus Pharmaceuticals, Inc. Development of Neuroactive Steroids for the Treatment of Epilepsy Disorders

Orphan Drug Research