Research Conferences

We host a variety of speakers throughout the academic year to share information about rare disease research and industry. Seminars are free and open to the public. No advance RSVP is required.

Thursdays from 11:15am-12:30pm
MTRF 3–204 or Zoom

Date Speaker Department Title
1/26/2023 Mohamed Duklef ECP Orphan Drugs: Comparing Pricing Models across North America and Europe
2/2/2023 Chenxu Li ECP Investigation of Nervonic Acid as a Potential Therapy for Adrenoleukodystrophy
2/9/2023 Patti Engel Engage Health Patient Voice in Drug Development Through PRO Research
2/16/2023 Adeboye Bamgboye ECP NDA Submission: A review of guidelines and best practices
3/2/2023 Rare Disease Day N/A Diversity in the Rare Disease Community: Challenges for Newborn Screening and Early-life Genetic Testing Equity
3/9/2023 TBD TBD TBD
3/16/2023 TBD TBD TBD
3/23/2023 TBD TBD TBD
3/30/2023 TBD TBD TBD
4/6/2023 Sheana Gupta Alexion Clinical Perspectives on Wilson’s Disease
4/13/2023 TBD TBD TBD
4/20/2023 TBD TBD TBD
4/27/2023 TBD TBD TBD