Research Conferences

We host a variety of speakers throughout the academic year to share information about rare disease research and industry. Seminars are free and open to the public. No advance RSVP is required.

Thursdays from 11.15am-12.30pm
All Seminars will be held virtually on Zoom

Date Speaker Department Title
1/27/2022 Cathy Long Sanofi Genzyme Acid Sphingomyelinase Deficiency (ASMD) Disease Overview
2/3/2022 Chenxu Li PhD Student Impact of rare diseases on the community and healthcare systems
2/10/2022 NO SEMINAR WORLDSymposium 2022 N/A
2/17/2022 Robert Kriel CODR Getting older or getting old: Cancer in elephants
2/25/2022 Rare Disease Day z.umn.edu/rare2022 Successes & Challenges in Transition of Care for Rare Disorders
3/3/2022 Sarah Jane Brown and Caitlin Bakker UMN Libraries Avoiding Becoming Reviewer #2: Strategies for Being an Effective Peer Reviewer
3/10/2022 Alan Roloff Jazz Pharmaceuticals The Endocannabinoid System: Endocannabinoids, Phytocannabinoids and Disease Pathophysiology
3/17/2022 Mahmoud Al-Kofahi ECP Dose Extrapolation
3/24/2022 NO SEMINAR N/A N/A
3/31/2022 NO SEMINAR N/A N/A
4/7/2022 Rick Kingston ECP Dietary Supplements and other Natural Medicinals: studying health benefits, monitoring safety, and navigating the regulatory waters
4/14/2022 Mary Holmay Taysha Gene therapy work at Taysha
4/21/2022 NO SEMINAR N/A N/A
4/28/2022 Dick Schirber MHealth Fairview Center for Rare Diseases M Health Fairview’s Rare Disease COE – Building the Front Door
5/5/2022 Anna Plasch Zogenix Clinical Overview of Fintepla (fenfluramine oral soluation) for Dravet Syndrome
5/12/2022 Kelly Showel PharmD IV student Ketamine: pharmacology in dogs and humans

Orphan Drug Research