Research Conferences
We host a variety of speakers throughout the academic year to share information about rare disease research and industry. Seminars are free and open to the public. No advance RSVP is required.
Thursdays from 11:15am-12:30pm
MTRF 3–204 or Zoom
| Date | Speaker | Department | Title |
| 1/26/2023 | Mohamed Duklef | ECP | Orphan Drugs: Comparing Pricing Models across North America and Europe |
| 2/2/2023 | Chenxu Li | ECP | Investigation of Nervonic Acid as a Potential Therapy for Adrenoleukodystrophy |
| 2/9/2023 | Patti Engel | Engage Health | Patient Voice in Drug Development Through PRO Research |
| 2/16/2023 | Adeboye Bamgboye | ECP | NDA Submission: A review of guidelines and best practices |
| 2/23/2023 | NO SEMINAR | NO SEMINAR | NO SEMINAR |
| 3/2/2023 | Rare Disease Day | N/A | Diversity in the Rare Disease Community: Challenges for Newborn Screening and Early-life Genetic Testing Equity |
| 3/9/2023 | TBD | TBD | TBD |
| 3/16/2023 | TBD | TBD | TBD |
| 3/23/2023 | TBD | TBD | TBD |
| 3/30/2023 | TBD | TBD | TBD |
| 4/6/2023 | Sheana Gupta | Alexion | Clinical Perspectives on Wilson’s Disease |
| 4/13/2023 | TBD | TBD | TBD |
| 4/20/2023 | TBD | TBD | TBD |
| 4/27/2023 | TBD | TBD | TBD |