News and Events

The Chloe Barnes Advisory Council on Rare Diseases (CBACRD) has created The Rare Diseases Health Care Access Study to change the outcome for Minnesota patients and families living with rare diseases. With better understanding of rare diseases’ barriers to seeking and accessing health care,

Sruthi Subramanian, a Mounds View Senior High School student and CODR volunteer, created an impressive 11-minute documentary to celebrate the 30th anniversary of the American's with Disabilities Act (ADA).

Congratulations to Siddhee Sahasrabudhe, ECP graduate student and mentee of Dr. Reena Kartha, who was recently accepted into the nationally competitive Rare Disease Clinical Research Network (RDCRN) Rare Disease Scholar Program for the 2020-2021 academic year. The program is designed to support students as they build a career in rare disease research. Congratulations, Siddhee!
Reena Kartha portrait

Dr. Reena Kartha will be teaching a first-of-its-kind Freshman Seminar course on Rare Diseases: What It Takes To Be a Medical Orphan this Fall. The course was accepted into the University of Minnesota’s Grand Challenge Curriculum and will consist of weekly seminars and readings on topics related to the understanding of rare diseases and the economics, regulatory and public policy aspects of development of drugs (orphan products).

Q&A with Dr. Kartha about the course

Dr. Abhishek Sathe

On behalf of his co-mentors Drs. Coles and Cloyd, please join us in congratulating Dr. Abhishek Sathe for his successful PhD defense on August 20, 2020. It was a first for the department - an all virtual final oral exam using Zoom. Congratulations Dr. Sathe!

Dr. Reena Kartha presented her work at a few recent conferences:
  • "Industry-Academia Collaborations for Accelerating Therapeutic Innovations in Rare IEM Disorders," Inborn Errors of Metabolism Drug Development Summit 
  • "Patient Access, Recruitment & Retention for Rare &
    Ultra-Rare Metabolic Diseases," 
     Inborn Errors of Metabolism Drug Development Summit post-conference workshop   

Dr. Natalie Schmitz, 2018 alumna of ECP's PhD program, and Sarah Kim, current ECP PhD student, were recently accepted into one of NIH's highly coveted Loan Repayment Programs. The program will repay 50% of their student loans over the course of the next two years. Congratulations, Natalie and Sarah!

Lori Endsley was recently accepted into the first cohort of the College of Pharmacy's Leading Change and Project Management Initiative. The eight-week program is designed to teach and hone project management skills. This program is intended to support staff development to take on collegiate level initiatives tied to our strategic plan and likely engage faculty and staff from multiple units/departments. Congratulations Lori!

 

Congratulations to Jim Cloyd for being appointed to the scientific advisory board of Citizens United for Research in Epilepsy (CURE). The CURE scientific advisory board provides insights on the landscape of epilepsy research and strategic guidance on areas that CURE could drive impact for those affected by epilepsy. CURE is the largest funder of epilepsy research outside of the NIH and Department of Defense.

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