News and Events

Congratulations to Sruthi Subramamian on earning a 2021 Empower Scholarship from Courage Kenny. This award supports students of color who are pursuing careers in a medical or rehabilitation field. Sruthi is a freshman at the University of Minnesota with an interdisciplinary major in Biology, Society and the Environment with a goal of becoming a pediatric Neurologist. She created an eleven-minute video recognizing the 30th anniversary of the Americans with Disabilities Act and has been active with CODR.

Global Genes is hosting Dr. Reena Kartha for one of their Ask Me Anything sessions on October 27, 12:30pm EST. Dr. Kartha's course on Rare Diseases: What it Takes to be a Medical Orphan, her research on oxidative stress and rare inherited metabolic disorders, and CODR's collaboration with the Dept. of Theater Arts and Dance to produce a play that examines the challenges of those living with rare disorders are all being highlighted.

Dr. Kartha was recently honored by Engage Health as a Rare Disease Difference Maker for her positive impact in the rare disease community. The person who nominated her noted, "Dr. Kartha has created an undergraduate course which is inspiring future med students, researchers, and medically-interested individuals to explore the impacts of rare disease and how underserved these communities are underserved within healthcare, along with ways that we can work to improve their healthcare services." We couldn't agree more! Congratulations Reena!

On September 30, speakers from FDA's Center for Biologics Evaluation and Research (CBER) presented during CODR's Seminar Series. A recording of that presentation is available here

Dr. Reena Kartha was invited to speak at the 6th National Indian Society of Inborn Errors of Metabolism Virtual Conference on August 28-29, 2021. Her talk, "Clinical Pharmacology considerations for repurposing natural products for IEMs" summarized our N-acetylcysteine and Nervonic Acid projects. Congratulations Reena on earning this well-deserved international recognition for your work!

A well-deserved congratulations to Chenwei Yan, undergraduate student working with CODR, on her summer internship at the Global Liver Institute as a Pediatric and Rare Liver Disease Intern. It is a non-profit organization based in Washington, DC which advocates for patients and families impacted by liver diseases. She will be working on a proposal for their next Rare Liver Disease Month (Feb 2022) and also helping to put together education materials for medical professionals (for continuing medical education purposes).

Please join us in welcoming Erica Barnes, administrator of the Minnesota Rare Disease Advisory Council (RDAC) as an affiliate member of CODR. We are happy to recognize her long-standing involvement in CODR, not to mention the rare disease community as a whole. She has been an integral member of the Rare Disease Day planning committee and a regular attendee of our weekly CODR Research Seminars. Thank you, Erica, for accepting our invitation to officially join our team!

Congratulations to Siddhee Sahasrabudhe, CODR graduate student, for being offered a summer internship with the Clinical Pharmacology and Exploratory Development Group at Astellas Pharmaceutical. Good luck, Siddhee!

Dr. Reena Kartha will speak at the NIH Rare Disease Day Virtual Conference about her fall 2020 freshman seminar on rare diseases. Her talk, "Novel Rare Diseases Course for Undergraduate Freshmen — Successes and Lessons Learned" will be on Monday, March 1 at 3:10 PM EST. The event is free and open to the public.

CODR graduate student, Siddhee Sahasrabudhe, will be interviewed by CheckRare regarding her presentation, "Modeling potential interactions between oral Gaucher disease treatment and investigational COVID-19 therapies," at this year’s WORLDSymposiuconference.