News and Events
The Rare Disease Legislative Advocates (RDLA) announced Erica Barnes as one of the 2019 RareVoice Awards state advocacy finalists. Erica Barnes is the council administrator of the Chloe Barnes Rare Disease Advisory Council and a member of the University of Minnesota Rare Disease Day planning committee. The RareVoice Awards is an annual celebration, now in its eighth year, to honor advocates who give rare disease patients a voice on Capitol Hill and in state government.
New to the spring 2020 Grand Challenge Curriculum, Dr. Kartha will be teaching a Freshman Seminar on "Rare Diseases: What it Takes to Be a Medical Orphan." The Grand Challenge Curriculum launched in Fall 2015 in support of the University of Minnesota strategic plan. Grand Challenge Freshman Seminars engage first-year students in complex issues facing the world and introduce the importance of interdisciplinary approaches. Sign up
Dr. Kartha has joined the Board of Directors for IndoUSrare. Her role will be to accelerate clinical research leading to faster diagnostics, cures for rare diseases by engaging US sponsors and CROs to include India in their clinical trials and foster collaborations between patient advocacy groups and researchers in the USA and India to help accelerate clinical research, trials and therapy access across borders.
Congratulations to Dr. Lisa Coles, along with Drs. Seaquist, Öz, Moheet, Mangia, and Eberly, on being elected to membership in the Office of Academic Clinical Affairs (OACA) Academy for Excellence in Team Science! This Academy is intended to acknowledge the valuable and significant contributions made by an exemplar interdisciplinary team conducting biomedical or health care research to address significant health challenges.
On Friday, August 9, 2019 the faculty, staff and students of CODR celebrated summer and their recent achievements at the home of CODR Director, Dr. Jim Cloyd.
Honors and Awards
Congratulations to Irene Vuu: On August 13 Irene Vuu, PharmD, ECP graduate student and mentee of Jim Cloyd successfully defended her PhD dissertation entitled “Development of Parenteral Drugs for the Treatment of Seizure Emergencies.” Her presentation was well organized, clearly and articulately delivered, and included some exciting data. The examination committee was impressed with her ability to think on her feet and to answer questions that required synthesis of information to come to an answer.
Rare disease advocates joined Governor Tim Walz on June 18, 2019 for a ceremonial signing of the bipartisan Rare Disease Advisory Council bill. The bill will create the Chloe Barnes Rare Disease Advisory Council at the University of Minnesota to coordinate the study and treatment of rare diseases.