News and Events

A well-deserved congratulations to Chenwei Yan, undergraduate student working with CODR, on her summer internship at the Global Liver Institute as a Pediatric and Rare Liver Disease Intern. It is a non-profit organization based in Washington, DC which advocates for patients and families impacted by liver diseases. She will be working on a proposal for their next Rare Liver Disease Month (Feb 2022) and also helping to put together education materials for medical professionals (for continuing medical education purposes).

Please join us in welcoming Erica Barnes, administrator of the Minnesota Rare Disease Advisory Council (RDAC) as an affiliate member of CODR. We are happy to recognize her long-standing involvement in CODR, not to mention the rare disease community as a whole. She has been an integral member of the Rare Disease Day planning committee and a regular attendee of our weekly CODR Research Seminars. Thank you, Erica, for accepting our invitation to officially join our team!

Congratulations to Siddhee Sahasrabudhe, CODR graduate student, for being offered a summer internship with the Clinical Pharmacology and Exploratory Development Group at Astellas Pharmaceutical. Good luck, Siddhee!

Dr. Reena Kartha will speak at the NIH Rare Disease Day Virtual Conference about her fall 2020 freshman seminar on rare diseases. Her talk, "Novel Rare Diseases Course for Undergraduate Freshmen — Successes and Lessons Learned" will be on Monday, March 1 at 3:10 PM EST. The event is free and open to the public.

CODR graduate student, Siddhee Sahasrabudhe, will be interviewed by CheckRare regarding her presentation, "Modeling potential interactions between oral Gaucher disease treatment and investigational COVID-19 therapies," at this year’s WORLDSymposiuconference. 

Congratulations to Siddhee Sahasrabudhe, CODR grad student, on being named a 2021 Cloyd Fellow and for being selected to participate in the NINDS Neurotherapeutics Training Course. Congratulations, Siddhee!

The American Pharmacists Association Academy of Student Pharmacists (APhA-ASP) National Patient Care Project Awards have been announced! The 2018-2019 Generation Rx Coordinators were: Mahli Scheible, Patricia Maglalang, Cassie DeGoey and their Advisor, Dr. Randy Seifert. The hardwork and dedication they showed through their initiative during the 2018-2019 Academic year to work with communities to shed light on drug misuse prevention and treatment won them the title of 1st Runner-up (aka 2nd in the Nation)!

The Chloe Barnes Advisory Council on Rare Diseases (CBACRD) has created The Rare Diseases Health Care Access Study to change the outcome for Minnesota patients and families living with rare diseases. With better understanding of rare diseases’ barriers to seeking and accessing health care,

Sruthi Subramanian, a Mounds View Senior High School student and CODR volunteer, created an impressive 11-minute documentary to celebrate the 30th anniversary of the American's with Disabilities Act (ADA).

Congratulations to Siddhee Sahasrabudhe, ECP graduate student and mentee of Dr. Reena Kartha, who was recently accepted into the nationally competitive Rare Disease Clinical Research Network (RDCRN) Rare Disease Scholar Program for the 2020-2021 academic year. The program is designed to support students as they build a career in rare disease research. Congratulations, Siddhee!