Rare Disease Day 2026

Rare Disease Day logo

Therapies for the Few, Impact for Many: Rethinking How We Develop Rare Disease Treatments

Thursday, March 5, 2026
Attend in-person or virtually
McNamara Alumni Center (200 Oak St SE, Minneapolis MN)

2026 Speakers

Professional photo of Robert Schuck

Robert Schuck, PharmD, PhD Deputy Director, Division of Translational and Precision MedicineOffice of Clinical PharmacologyCDER, FDA

"Advancing Orphan Drug Development Through Regulatory Innovation"

Professional Photo of Margot Cousin

Margot Cousin, PhD, Assistant Professor of Medical Genetics, Department of Molecular Medicine, Department of Neurology, Director N-of-1 Therapeutics Program, Center for Individualized Medicine, Mayo Clinic

"From small n to Big N: Learning, Scaling, and Transforming Rare Disease Care"

Professional headshot of Sharon King

Sharon King, Chief Operating Officer National MPS Society 

"When Purpose Aligns: Patients, Science, and Shared Resolve"

Patient Advocacy Breakfast 2026

"Navigating Healthcare Delivery in an Evolving Legislative Landscape: PAG Perspectives on Case Management and Medicaid Services"

Moderated by Erica Barnes, Executive Director, Minnesota Rare Disease Advisory Council

Rare Disease Day 2026 Registration

2026 Poster Submission

The deadline for both registration and poster submission is February 25th

2026 Agenda

9:00 AM - 10:30 AM | Patient Advocacy Breakfast (moderated by Erica Barnes)

9:30 AM - 2:15 PM | Exhibitor Tables

10:00 AM - 11:45 PM | Poster Session With Presenters in Attendance (posters will remain up until 2:15)

11:45 PM - 2:15 PM | Formal Program