Rare Disease Day 2025

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Join us for Rare Disease Day 2025!

Navigating Rare Disorders: Insights from Lived Experience

Thursday, March 6, 2025
Attend in-person or virtually
McNamara Alumni Center (200 Oak St SE, Minneapolis MN)

Keynote speakers

Stephanie Tomlinson

Stephanie Tomlinson
Co-Chair of the Undiagnosed Diseases Network Foundation PEER team
 


 

haley brunelle

Haley Brunelle
Family Engagement in Research Coordinator, Gillette
CEO, Team Felix Neptune
Podcast co-host, Rarely Familiar


 

Kathleen Bogaty

Kathleen Bogart, PhD 
Professor of Psychology and Director of the Disability and Social Interaction Lab at Oregon State University